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Growing Up and Moving On: Transition Planning Information

Disclaimer: This fact sheet is for education purposes only. Please consult with your doctor or other health professional to make sure this information is right for your child.

Transition...

is the planned and coordinated move from paediatric care to the adult health system for those young people who will require ongoing medical care.

When does it begin?

Planning usually begins in adolescence. It is important that your child understands that some day they will move on, and feel confident about making the move. Most young people will start asking questions early in adolescence.

How can parents plan for it?

Talk to your son or daughter. During adolescence your son/daughter may have questions about their future health care. Explore the options together and encourage them to ask questions.

They may start to ask:

• At what age can an adolescent still be admitted to the Children's Hospital?
• How do you choose an adult Dr?
• What adult health services are available?
• How are they referred on?

Timing of transition is flexible according to the individual needs so the answers to these questions may differ according to the condition.

How should the adolescent prepare for this change in health care?

• Information and education are the keys to independence. The better prepared, the easier it is to make the move.
• Having a "checklist" sometimes helps to organize the process.
• Young people need to talk to doctors on their own. Your adolescent might like to think about seeing the doctor for part of each visit on their own.
• They may like to know more about changes that happen during adolescence, and how they may affect their condition.
• They should begin practising independent health care skills such as taking responsibility for medications, learning what to do in an emergency and booking appointments.
• Young people should have a trusted GP. A GP can provide a lot of support during transition and is an essential link once the young person enters the adult health system.
• Teach them how to find out about the adult system, and access services, including applying for their own Medicare or health care card.

The pace at which transition occurs may vary, depending on your son/daughter's medical condition and goals.

It should be seen as part of the move towards independence.

What can parents do to help?

Parents/caregivers play a vital role in the planning of transition. It can be difficult to "let go" as adolescents learn to become independent young people.

It's important to talk to your son or daughter about their condition and the health care they will need as an adult, so they feel comfortable talking to others about it.

Teach them about the long term effects of their health condition - talk to them about their goals.

Support decision making, by offering choices to promote responsibility and independence.

Encourage them to write down any questions to ask the doctor and health care team.

Help them to begin planning for the future, and accept your changing role in their health care management.

We hope that you will share the information in this brochure with your son or daughter and encourage them to discuss issues with you and their health care team.

For further information contact:

Transition Care Coordinators or the Program Manager:

CHW Transition Coordinator
The Children's Hospital at Westmead
Bin Moore
Ph: 9845 2446
Email: binm@chw.edu.au

Adult Transition Coordinators
Westmead Hospital (Western NSW)
Joanne Brady
Ph 9845 7787 Fax 9845 7006
Email: Joanne.Brady@swahs.health.nsw.gov.au

Royal Prince Alfred Hospital (Central & Southern NSW)
Lif O'Connor
Ph: 9515 6382
Email: lif.Oconnor@email.cs.nsw.gov.au

John Hunter Hospital (Northern NSW)
Tracey Finn and Karen Johnson-Dewit
Ph: (02)40164783 Fx:(02)40164660
Email: Karen.Johnson-Dewit@hnehealth.nsw.gov.au

GMCT Program Manager
Lynne Brodie
Ph: 9887 5578
Email: lbrodie@nsccahs.health.nsw.gov.au

More information can be found at:

www.health.nsw.gov.au/gmct/transition

The Children's Hospital at Westmead Tel: (02) 9845 3585 Fax: (02) 9845 3562 www.chw.edu.au	Sydney Children's Hospital, Randwick Tel: (02) 9382 1688 Fax: (02) 9382 1451 www.sch.edu.au	Kaleidoscope, Hunter Children's Health Network Tel: (02) 4921 3670 Fax: (02) 4921 3599 www.kaleidoscope.org.au